FORENING FOR SJELDNE NEVROUTVIKLINGSFORSTYRRELSER
Operating
Skal spre kunnskap om de sjeldne
nevroutviklingsforstyrrelser. Yte støtte til ny diagnostiserte
familier.Jobbe interessepolitisk for et bedre internasjonalt samarbeid
sjeldne diagnoser. Jobbe interessepolitisk for å sikre tilgang på nye
behandlinger til sjeldne nevroutviklingsforstyrrelser i Norge. Det
være seg både medisinske behandlinger, off-label behandlinger, samt
genterapier. Tilby likepersonsarbeid til familier som trenger det.
Formidle kontakt til andre med samme diagnose eller lignende diagnose.
Keywords
refugee reception
Organization
- Chairman of the board
- LJ
- Years since formation
- 2 years
- since May 8, 2023
- Type
- Association/club/organization
- VAT registered
- No
- Number of employees
- 0
Last update: Sep 9, 2025
Management
Board
| Name | Role | Shares |
|---|---|---|
LJ | Contact Person, Chairman | - |
| Board Member | - | |
MG | Board Member | - |
| Deputy Chair | - |
Last update: Aug 25, 2023
Ownership
No available data
Financials
in NOK
No available data
Classification
21st company classification
BETA
Small company
Category
Type of organization
Association/club/organization
Standard industrial classification
Q
Main industrial area
Human health and social work activities
88
Activity
Social work activities without accommodation
88.9
Main industrial group
Other social work activities without accommodation
88.99
Industrial group
Other social work activities without accommodation n.e.c.
88.996
Industrial group
Reception centres for asylum seekers